Well, here I am on yet another business travel adventure, this time in North Carolina. The flight over wasn't too terrible, Misophonia-wise. I wound up getting to the gate right about the time they were about to board the plane, so I didn't have to hang out at the gate too long. Usually, I like to get to my flight early but the closeness of my arrival was partly due to the fact that I didn't realize I had a very long screwdriver in my computer bag from when I was wiring up a custom light fixture sample. I was so embarrassed when TSA pulled me aside to go through my bag (I swear I didn't realize it was there), but since the screwdriver was part of a set that belongs to my company, I asked if I could bring it back to my car. (Thank goodness my home airport is very small.)
Anyway, just an update after my annual physical with my primary. We have a very interesting talk about my misophonia. She had received all the reports from my visits to the Mayo Clinic and to the Neuro-otologist and I also brought the DVD with my 3D brain scan, and the associated reports from the radiologists, that I got from my trip to the MRI specialist back in March. I mentioned my thoughts about trying to have an fMRI scan done to see if it can detect areas of the brain that become more active when I'm exposed to triggers. She said she'd have to do a little more research first (since she has access to many more resources in the medical industry than I do) and would get back to me. She mentioned she wanted to be aware that some of these procedures may not be covered by my insurance, but I told her since my company signed us up for a high deductable plan, anything that's not preventative medicine would come out of my pocket anyway, so I wasn't as concerned about it. I know this is not going to be an easy, or inexpensive, journey for relief.
One thing that she offered was a medication that's used for anxiety and muscle issues. (I had explained to her my triggers are really bad at the office.) I mentioned that the Neuro-otologist had given me a prescription for clonazepam, but I didn't like it because it made it very hard to wake up in the morning. My primary said she wasn't surprised because that medication is a sedative. She offered me some samples of Pristiq, which she said is not only non-sedating, it also doesn't have any weight changing side effects - which I was happy to hear. She said that it would take a couple of weeks for it to take full effect. I'm only on day six, so hopefully I'll have something to report in another week or two.
On another note, I recently learned about a new study in the UK where they're going to use an fMRI to study the effects of triggers on people with misophonia. (As mentioned above, that's something of interest to me.) I immediately contacted the researcher as soon as I heard about the study, and very shortly after my initial email, he sent me a questionnaire to fill out. I've got my fingers crossed that they'll accept me as a candidate for the study.
Anyway, just an update after my annual physical with my primary. We have a very interesting talk about my misophonia. She had received all the reports from my visits to the Mayo Clinic and to the Neuro-otologist and I also brought the DVD with my 3D brain scan, and the associated reports from the radiologists, that I got from my trip to the MRI specialist back in March. I mentioned my thoughts about trying to have an fMRI scan done to see if it can detect areas of the brain that become more active when I'm exposed to triggers. She said she'd have to do a little more research first (since she has access to many more resources in the medical industry than I do) and would get back to me. She mentioned she wanted to be aware that some of these procedures may not be covered by my insurance, but I told her since my company signed us up for a high deductable plan, anything that's not preventative medicine would come out of my pocket anyway, so I wasn't as concerned about it. I know this is not going to be an easy, or inexpensive, journey for relief.
One thing that she offered was a medication that's used for anxiety and muscle issues. (I had explained to her my triggers are really bad at the office.) I mentioned that the Neuro-otologist had given me a prescription for clonazepam, but I didn't like it because it made it very hard to wake up in the morning. My primary said she wasn't surprised because that medication is a sedative. She offered me some samples of Pristiq, which she said is not only non-sedating, it also doesn't have any weight changing side effects - which I was happy to hear. She said that it would take a couple of weeks for it to take full effect. I'm only on day six, so hopefully I'll have something to report in another week or two.
On another note, I recently learned about a new study in the UK where they're going to use an fMRI to study the effects of triggers on people with misophonia. (As mentioned above, that's something of interest to me.) I immediately contacted the researcher as soon as I heard about the study, and very shortly after my initial email, he sent me a questionnaire to fill out. I've got my fingers crossed that they'll accept me as a candidate for the study.
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