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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

Please feel free to post any comments or use the "Contact Us" page if you have any questions/comments you don't want to post online.

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More travels and articles

3/15/2015

2 Comments

 
This past week, I traveled to California for a business trip. Although I tried to post an update during my travels, for some reason the web host updated their App and I wasn't able to post anything new from my iPad. (Hence the delay with the update since I had to wait until I got back to Vegas an onto my regular computer.)

Of course, traveling has its usual misophonia woes with airports full of triggers, so I won't write about those. (Just look up any of my prior traveling posts. Same stuff, different day.) I was very excited to connect up with my BFF at a place halfway between the conference and where she lives. She's one of the few people who truly understands my suffering, despite her not being a sufferer. Even before we met up, she expressed concern that the diner where we said we'd meet up might bombard me with triggers because of how busy/loud it is. I said let's just meet there anyway and play it by ear. In the end, yes I did put in my earplugs to lessen some of the sharper triggers but the overall din of the background noise actually didn't bother me. It helped mask some of the triggers.

The conference itself was a different issue. I found myself wearing my earplugs a lot - particularly during meals - and was very thankful that the presenters that spoke during the meals used microphones. I was able to hear their speeches without having to hear the clinking of people eating. 

On another note... Back in January, one of the professional lighting magazines to which I subscribed had an article about designing for environments to accommodate people with sensitivity special needs. The article focused on children with ADHD, autism, and sensory processing disorder, so  I wrote a letter to the editor praising the author of the article for a timely article where I also brought up my misophonia condition (published in this month's issue). The magazine has over 8,000 people around the world  in its readership base and although I don't know how many people read letters to the editor, even if just one person reads what I wrote, at least I know I educated one more person about misophonia.
2 Comments
Catherine Barber
3/15/2015 07:37:44 pm

That's one of my hugest bugbears - 'insensitively' designed environments! And, for me this means purely from a noise/acoustics/vibrations point of view - yet THESE particular aspects seems little thought-about or acknowledged. Whereas things on visual stimuli is the most written-about, and so gets most of the attention.

Sadly, it seems to me that anything concerning noise and sounds is an almost taboo subject, as if we're not supposed to be sensitive to these - and anyone who IS sound-sensitive just gets marginalized, and goes unrepresented!

Modern cheap building materials, a craze for cutting costs at all costs, and egocentric 'designers' all combine to provide an environment that is anethema to a sound-/vibration-sensitive person like myself.

Do feel free to publish or broadcast these points - the more this particular aspect concerning sound-/vibration-sensitivity gets published the better!

Reply
Emlyn
3/29/2015 04:56:40 pm

Thanks for your feedback, Catherine. Whenever you post comments like that on the blog, they're automatically published for all to see. (It's only when you contact me through the "Contact Us" page that your comments are private.)

And whenever I find articles like the one I saw in the professional magazine I read, I'll send letters to the editor to let people know that misophonia is another sensitivity condition that people should know. :-)

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    About the Author

    Emlyn Altman has been suffering with misophonia for over 40 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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