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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

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Talking about Misophonia...

9/19/2013

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Today I visited one of the local Toastmasters' clubs, knowing that I wanted to rejoin them again. I was a member from about 1997-2005, and then I stopped because my previous firm (where I started in 2005) was not near any club locations and I was too overwhelmed there to put in the time that I wanted. Toastmasters has greatly helped my speaking and leadership skills over the years and not participating in nearly a decade is definitely noticeable (at least to me). In fact, if it weren't for my Toastmaster's club back in 1997, I would not have had the courage or the skills to speak in front of 150 people at my first conference presentation back in 1999.

You may ask why I'm bringing this up in a blog that mainly focuses on misophonia issues. Well, each club around the world has it's own personality and way of running meetings. Today's club was one of two that I had narrowed down my choices where I'd want to join. It is a very friendly club (like most are), the speakers are strong (great inspiration for improvement), and they even do some extra steps to aid in self-evaluation opportunities (like video taping the presentations). One other thing that they do which, out of all the other clubs I've attended or visited over the years, I've never seen done before, is they have a "Treatmaster" who
brings in goodies to prevent stomach grumblings (since the meeting is held during lunchtime). When I visited them back in February, the Treatmaster brought in soft cookies and I sat in the very front corner of the table (to lessen any potential visual triggers during the presentations).

After the meeting, some of the members approached me and we talked about the meeting and my potentially joining their club. I explained to them that I really like the club very much, but as much as I *really* like the idea of the Treatmaster, I was worried if I might have trouble during meetings depending on what treats are brought into the meeting. That's when I explained my misophonia to them. Two gentlemen were especially intrigued by what I described, and I did my best to try to convey what it's like using the "nails on a chalkboard" and other examples. 

I wound up having a very long one-on-one conversation with the president after we all left the room. He seemed to understand how misophonia affects me and although we both agreed that we wouldn't want to eliminate the Treatmaster position from meetings, he said there may be ways of working with me so that the other members can help minimize potential triggers (like perhaps recommending to the Treatmaster of the Day that they don't bring in especially crunchy foods or crinkly packaging.) I said I've had to deal with this for over thirty years, so I'm sure that there are things that I can do too to make my experience there more comfortable without having to completely revamp the club (like my sitting at the front of the room next to the speaker's lecturn so that I can wear my earplugs to block out triggers yet close enough to still hear the presentation).

He also suggested that I look into Neurolinguistic Programmers as another type of physician who might have some perspective on how to help this condition. (I'll have to look into what they are in more depth before reporting anything further but as I've mentioned in other posts, I'm open to explore different avenues if they might lead to a source of relief!) I should also mention that this Toastmasters' club is located in Wellmark Blue Cross/Blue Shield's headquarters, so I might be able to get even more insights from other members of the club... (Only a fraction of the overall membership was at today's meeting.)

The fact that these members are willing to work with me and my misophonia, even though I was a complete stranger to them, made my decision which club to join much easier. It still might not work out, which I won't know until I attend more meetings with Treatmasters, but I'm willing to give it a shot!
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    About the Author

    Emlyn Altman has been suffering with misophonia for over 35 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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