After the meeting, I had the pleasure of speaking with two of the club's board members, as I turned in my completed application. They said they were looking forward to hearing more about my misophonia. What I found interesting is that they also said that they were sensitive to certain smells too, particularly perfumes. One even commented that she is bothered by women's perfumes more than men's colognes. That's when I shared my sensitivity to certain smells, particularly cigarette smoke, and told them about an experience I had nearly a decade ago...
Back when I was still in DC, I took public transportation everywhere. (It was cheaper than owning a car and it actually helped me get to know the area better since I didn't have to pay attention to the road.) One day when I was going downtown to the office, I sat down in a window seat on the bus. This man, who got on the bus a little after me, plops himself in the empty seat next to me. He must have just finished a cigarette at the bus stop because the smell of smoke around him was completely overwhelming. I knew I knew I wasn't
It's amazing that no matter how hard I try to be discrete when removing myself from exposure to triggers,
people can still be offended by my actions. Was I supposed to draw more attention to the reason why I was switching seats by being proactive and telling him that his smoke odor was making me uncomfortable, or was it better for me to just quietly ask him to let me out without saying why? I thought the latter was the better way to go, so that I wouldn't be overtly offending him, but I guess I was wrong. I wonder if he would have stopped making that scene had I not added the comment about being "allergic" to cigarettes...
Several months ago, I wrote a post about an incident while waiting for a metro train where I asked a man to stop tapping his ring on the metal banisters, but instead he wound up doing it even more. When I relayed what happened to my aunt, she said that when he asked why he should stop, I should've told him that I recently had ear surgery and the noise of the clanging ring was very painful. I wondered to myself was it really necessary to exaggerate (or lie) like that just for people to be tolerant of a simple request to stop doing something that I'm sure annoyed more than just myself on the platform?
Even though I didn't know about the term misophonia until years after both of those incidents, people seem to be more tolerant when they think a person's discomfort is related to a KNOWN medical issue (even if it's just an allergy). I'm hoping that misophonia will one day be as widely recognized as other medical conditions so that we can be more honest about the"Why's" without having to exaggerate them.
Well, going back to my conversation with the two other Toastmasters... After sharing what happened to me on the bus, they both seemed to understand that it's not always easy to discretely remove myself from the discomfort of triggers. It will be interesting to see how other people in the club react to my situation. I plan to use my first speech as a way to not only introduce myself to my new club mates, but also to introduce them to what misophonia is. It'll be the first time I've spoken to a (relatively) large group of people about misophonia, so it'll be interesting to hear their thoughts afterwards...