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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

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A future return to my past

8/11/2013

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This morning, I finalized plans to return to my birthplace to pay my respects to my parents (who passed away when I was really young) and to visit close friends of my father while there. (For those of you who are new readers of this blog, I wrote about what happened in a "Deep Thoughts...." post back in April.) My aunt and I have talked about making the trip back every year for the past several years, but usually my schedule wouldn't allow me to get away. Since the past year has been a big journey for me down "memory lane," especially while trying to write about that part of my life in my misophonia memoir manuscript (try saying that five times fast), I knew I couldn't put off the trip back any longer. I needed to go back, not just because I was long overdue to visit my parents' grave. I feel that immersing myself in that environment again might spark memories of long ago that might bring further insight into how my misophonia developed in those early years. Perhaps I can even learn things about my father from his friends that I might not have seen or understood at such a young age but may somehow be connected to misophonia. (Misophonia is commonly thought to be hereditary, but since my parents died decades before I even knew about the condition, I may never know if either - or both - of them may have had some trigger sensitivities as well.)

The past week, leading up to the decision to finalize my travel plans, has sparked some interesting thoughts about that time in my life... Firstly, while I was writing yesterday's post about this week being the last week of my 10-week fitness regime kickoff (yes, I enjoyed it so much, I renewed for another year), it occurred to me that I am right now at the exact age when the local TV station did their three-part report on heart attacks, which featured my father. (I wrote about it in my 2/24/13 post.) I thought to myself how, other than the fact that I never touched a cigarrette whereas my dad was a two-pack-a-day smoker, I am very much like him when he was my age.  We're both Type "A" personalities with extremely stressful jobs, I'm only a little heavy for my own liking whereas he was quite overweight, he had a major heart condition that loomed over his well-being and my misophonia definitely has affected my way of life too... And yet we both
decided to change ourselves through exercise and eating better. Unfortunately, he had too many strikes against him by the time he finally made the change, but I've been lucky to have steered clear of cigarrettes (not counting second-hand exposure).


The second "deep thought" I had about those early years in my life was that my sensitivities to trigger sensations may not have had opportunities to reveal themselves because of how my environment was back then. It's not that I had a bad upbringing, but rather I grew up during those early years in a very isolated
environment. What I mean is that I was an only child and for some reason, my mother didn't want me to go to pre-school or even Hebrew school (which must have been frustrating for my dad since he grew up with a strong religious upbringing.) I didn't really have playdates with kids my age and by the time I was in middle school,  my parents would head out to work and leave it up to me to get myself ready for school (which was only two blocks away.) Even at that young age, I had full control of my environment at home, so I wasn't exposed to eating triggers or fidgiting motions by hyperactive siblings. It was a very quiet environment, so the closest possible "trigger" sensations I can remember having at such a young age were more tactile annoyances by certain fabrics, like having to wear stockings.  I couldn't stand that itchy, tight sensation on my legs and to this day, I'm still annoyed the feeling of nylons or other similar fabrics, or even the sound of someone rubbing their hand along their own stocking'd legs. Just thinking about that sound or the feeling of nylons rubbing directly against my skin gives me the shivers. It used to drive me crazy when I'd sit in the back seat of the car with my grandmother (before she passed away) and she'd constantly be rubbing her hand up and down her stocking'd leg, probably because her diabetes made the circulation in her legs very
uncomfortable.  The scratchy sound made me want to jump out of the car, but instead I just sat there in agonizing discomfort anxiously waiting for us to get to our destination. Even nowadays, when I do feel it necessary to wear stockings for formal occassions, I wind up slathering a lot of lotion on my legs and hands
to buffer the feeling of that material against my skin and to lessen that scratchy sound while putting them on too. (I can't begin to tell you how much I've been squirming and shuddering in my seat as I typed that  paragraph.)

As far as meals with my parents, I don't remember any eating trigger sounds from the dinner table, but to be honest, I don't remember much about the dinner table at all. I was a pretty picky eater, to put it mildly, but the only thing I remember about eating was that I was the type of kid who would go to Burger King and order a cheeseburger but without the meat! (I'm laughing to myself as I typed that out because here I am sitting at Caribou Coffee working on this blog entry eating... You guessed it... A grilled cheese sandwich!) My younger self probably would've thought I'm crazy as an adult because my eating habits have expanded a LOT since those early years... Sushi, asparagus, grilled mussels, escargot, BBQ bacon cheeseburger.... All
yummy to me now, and foods you couldn't get near me with a 50-foot pole when I was a kid!!! (Granted, my orthodox grandfather is probably turning over in his grave with that last one... Sorry, puppa!) 

Putting my former eating habits aside, I doubt my dad would've crunched on ice (one of my triggers) because when he was in the army, long before I was even born, he was in a motorcycle accident that knocked out all his teeth. I remember he had dental bridges that sometimes caused him problems, so I doubt he would've been an ice cruncher. I also doubt I would've stayed at the dinner table long enough to hear my parents slurp hot coffee after the meal (if they did). I'm sure as soon as I was done eating, I would've asked to be excused so I could play Atari in the other room. I remember playing that a lot with my dad, and still have the game to this day. (I once tried connecting it up again when I lived in Philly back in the late '90s. The colors that came through the newer TV really hurt my eyes, so the only way I could play it was to switch it to black & white mode.) Pretty interesting how that game was the precursor to my passion professional work with 3D visualization computer graphics...

Digressions aside... I wonder had my environment as a kid been much less isolated/subdued, perhaps I would've been exposed to many more misophonia triggers and my frustrations with aural/visual/tactile  sensations would've emerged sooner. In hindsight, I guess that's something I'll never know...
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    About the Author

    Emlyn Altman has been suffering with misophonia for over 40 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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