Sense Haven: A Site Dedicated to Misophonia
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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

Please feel free to post any comments or use the "Contact Us" page if you have any questions/comments you don't want to post online.

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Another busy week

9/26/2013

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I feel like I'm way overdue for posting here, but it's been a VERY busy week. I had a wonderful beginning of the week by visiting my best friend in Indiana for a housewarming get together. I hadn't seen her in over a year, so I savored every moment we had together. Actually, it was during the last time I saw her, when I had a 24 hour trip back to DC, where I met a stranger on a plane who introduced me to the term misophonia. So, I am eternally grateful to my friend for inviting me to that special post-wedding celebration that changed my life. (Thank you, S!!!)

During the last few hours I spent with her on Sunday, we talked a lot about this blog/website, why I did it as a full-blown website, and not just a blog, how long it took me to put it all together... etc. I hadn't actually thought much about the last item when she asked but as far as the other questions, I knew I wanted to create a resource that would not only be informative to other sufferers like myself, but to help promote awareness and support to people who are connected with misophonia indirectly. I'll never forget when that stranger across the aisle on the plane mentioned having seen the 20/20 report on misophonia (when she overheard me try to explain to a flight attendant about my sound sensitivity), I pulled out my cell phone in record time trying to Google the term misophonia before the door closed, and then when it did, I was chomping on the bit for the plane to touch the tarmac, so I could boot up my phone again and continue my search. After realizing I wasn't crazy, that there was a medical condition for my decades of suffering, I
couldn't wait to soak up as much information as possible and the more I found similar reactions to other misophonia sufferers learning for the first time about the condition, I knew I wanted to create a "haven" for anyone to know they're not alone.

Anyway, as we talked on Sunday, I was so touched when my friend said how, although she doesn't suffer from misophonia, she could relate to what I experience. She even told me about a time last December when she explored the website while on a business trip. She felt a bit overwhelmed in that busy city, and decided to hang back one night in her hotel room to decompress. She never told me until last weekend about having spent a lot of time going through the website on that business trip, which really made me feel good. In fact, it was a wonderful start to my week (which, unfortunately, didn't last very long...)

This week was rough, not just because of my typical, overwhelming workload. Several employees have quit over the past couple of months, including someone who had been here for nearly 30 years, and the principals decided to meet one-on-one with all the employees to get a pulse on employee satisfaction and figure out why the sudden exodusof late. I wasn't thrilled to have less than a day to pull my thoughts together, on top of all my other responsibilities, but despite all my own frustrations with the company, one of the few POSITIVE comments I was able to offer during my (nearly three-hour) meeting with them was how much I appreciate that the firm is willing to work with me to accomodate my misophonia issues within my work environment. I explained to the principal and to the director of my studio that there are so many misophonia sufferers who work in situations where the firm and coworkers are not tolerant or understanding to what sufferers go through, so it meant a lot to me that they are openminded to helping me minimize any potential contributions to my misophonia issues at the office. (Now, if they will only work on some of the understaffing and other issues we discussed...)

All I can say is that I'm looking forward to putting this stressful week behind me.
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    About the Author

    Emlyn Altman has been suffering with misophonia for over 35 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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