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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

Please feel free to post any comments or use the "Contact Us" page if you have any questions/comments you don't want to post online.

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Back in the Swing of Things

1/12/2018

5 Comments

 
TGIF! It's amazing how fast the weeks go when you are happy and enjoy where you are in life. The move back to Vegas has been a good one for me. Love my new job (just passed the 90-day mark a couple of days ago), and am happy in my new home (despite still needing to unpack a few more boxes and hang up my artwork). I'm making new friends too.

Misophonia-wise... Now that I'm not being a hermit in my home anymore (the PNW trees/grasses/shrubs made me very sick) and I'm not working alone in an office, I'm back to the typical exposure of daily life triggers.  My cubicle pod is right next to the kitchenette so there's always the sound of clinking silverware on China. Occassionally I've had to ask someone to stop doing a particular trigger. When I do, for the most part people are understanding. I'm lucky that my pod-mates are conscious of some of the triggers that bother me, and are apologetic if I do mention something is triggering me. One of my pod-mates was even curious to know more about my misophonia.

On the other hand, I still do encounter the occasional person who gets annoyed by my asking to stop a trigger. One situation in particular is the new choral group I joined. I'm so happy that my allergies have cleared up and I can get back to singing again; however, I was assigned a position smack in the center of the risers where all of the choral members stand. One woman, who I can't seem to get away from, originally stood in front of me but is now behind me.  She's triggered me with her knuckle cracking and even whistling , which is really bad because the risers put her mouth at the same level as my ear so the whistling trigger is even worse. At the last rehearsal, I asked her to stop b/c of my sound sensitivity. She looked at me as if I was crazy. Like, "How can you have a sound sensitivity and be in a singing group."

What people don't understand is that it's the TYPE of sound that is bothersome, not all sounds.  The person next to me seemed to understand, but I do worry about what's going to happen in the future with this "culprit." I have to be in my assigned location until April, due to our getting ready for a competition in March and our locations were specifically arranged to get the optimum sound for the group. Once we get beyond the contest though, I think I'm going to bring up my situation with the Director of the group and see if I can be relocated.

We'll see what happens....
5 Comments
Kaitlyn
3/6/2018 05:05:06 pm

There is no doctor in my area, that I know of, that knows about Misophonia. My parents and I believe that I have Misophonia(I more than my parents), but it would be helpful to know for sure from a doctor if I do, so that my mom and dad take it seriously and listen to me when I tell them whats going on. It is so frustrating to not have someone that wants to listen.

Reply
Emlyn
5/20/2018 03:09:33 pm

Hi, Kaitlyn. Thank you for your comment. I can completely relate to your sentiment.

When I first learned about Misophonia, back in 2012, I was living in the middle of Iowa - which not only frustrated me b/c between 1999-2011, I had been living two miles from the National Institutes of Health, but also b/c when I tried to go to a medical expert (namely a neurologist at the "nearby" Mayo Clinic), I knew more about the condition than he did. (If you go back to the archive of some of my first blog posts, you'll read that he googled the condition right in front of me).

All I can suggest is to hang in there and to explore different specialists in your area - namely audiologists and otoneurologists, who would be more likely to be familiar with misophonia than a general practitioner...

As time goes by though, this condition will become more known among the general public and the medical community. The more people hear about it, the more likely you'll be able to find people with compassion towards your experiences with misophonia. :-)

Reply
Annette conley
8/11/2018 01:01:04 pm

I have had miso for over 40 years. I really thought I was the only person in the world that had is problem. Even though I would never wish this for anyone else I am glad I am not alone. I heard about this condition 6 years ago for the first time!!!

Reply
Emlyn
9/13/2018 11:04:03 pm

Hi, Annette. No, you're not alone! I suffered with it for over thirty years before finding out that my sensitivities were actually a medical condition, and not because I was "weird."

Hang in there. The word is getting out and more people are learning about Misophonia. Hopefully, that will mean more efforts by doctors/researchers to understand the condition and eventually develop an effective treatment/cure. :-)

Reply
Betty Pottorff link
8/11/2019 02:56:08 pm

I too thought I was the only one who had these issues. Until recently, and I am 68, on Dr Phil (1st show) was I able to put a name to it. Misophonia. I suffered many years trying to tolerate these annoyances I couldn't control. I was given Ativan which doesn't address the problem.Makes you "loopy" on top of things! I suffer from it now. I have a neighbor who unloaded on me about quieting his flagpole. He doesn't understand how I could be bothered by it. He says there are lots of noises outside...I should block it out! He also accused me of "Harrassing" him! I was shook for days. He is a so called chaplain at the prison close by. Nice!!

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    About the Author

    Emlyn Altman has been suffering with misophonia for over 40 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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