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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

Please feel free to post any comments or use the "Contact Us" page if you have any questions/comments you don't want to post online.

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Baffling Triggerer actions...

4/25/2014

2 Comments

 
As per my previous post, last night I did take my neighbor to her grandson's high school Jazz band concert. In general, it was enjoyable. I always love hearing live music and it's amazing to see how talented the kids were. (They ranged from 7th grade all the way up to seniors and the solo riffs were impressive.)

What baffled me is that, while we were eating pizza and waiting for the concert to begin, I noticed a high school girl across from me at the adjacent table bouncing her foot. She bounced it non-stop for almost a half hour before the concert began **BUT** as soon as the concert started, her foot was completely still! She didn't even bounce it to the rhythm of the music. WEIRD!!!  I took videos of both scenarios below but if you have misophonia, please don't play the first one. I don't want to stress out anyone. I just found it strange how she stopped bouncing her foot after the music started. It seemed so backwards to me. (Not sure what made me videotape her bouncing foot in the first place but, given the second video, I'm glad I did.) I'm only posting the videos for non-sufferers to see one of the simply innocuous movements that can annoy sufferers. Don't feel obligated to watch either video.

On another note... I should also mention that the author of "Sound Rage," Judith Krauthamer, just posted information about a twenty-page statistical analysis report derived from an online survey of over 470 misophonia sufferers. (A summary of the report is at the bottom of the home page.) The demographic findings address types and prevalence of triggers, reactions, gender, age, and even responses to triggers, as well as other datasets. For more information, and to request a PDF of the Descriptive Statistics report, go to the Contact page on the "Sound Rage" website.

2 Comments
Bonnie link
4/27/2014 12:50:12 am

I view the foot bouncing as a nervous habit. Perhaps the girl was anxious for the program to begin.

On a different note: I am curious if you have heard anything back on your FMRI. There is an interesting study involving brain scans of children with SPDs using diffusion tensor imaging.
http://www.ucsf.edu/news/2013/07/107316/breakthrough-study-reveals-biological-basis-sensory-processing-disorders-kidsi

Reply
Emlyn link
4/27/2014 04:33:02 am

Not yet, Bonnie. From what I was told after my fMRI tests were finished, I was only the fourth participant in the study. The researchers are probably still collecting data from other participants right now. It is my understanding that they would likely begin to compile all the data in late summer. The results likely won't be ready until September or so. I'm anxious to hear what they discover too!

Thank you for the link to the article. I'll add it to one of the resources pages.

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    About the Author

    Emlyn Altman has been suffering with misophonia for over 40 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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