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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

Please feel free to post any comments or use the "Contact Us" page if you have any questions/comments you don't want to post online.

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Devastating news after final fMRI test

2/13/2014

4 Comments

 
Today was the second (and last) test for my participation in the misophonia fMRI research study. I was actually feeling quite good about it afterwards (despite being stressed with the triggers thrown at me during the tests) and couldn't wait to post some of my experiences here while enjoying a relaxing drink at the hotel bar. Unfortunately, I'm going to have to ask you all to hold on a little bit longer for that update...

When I got back to the hotel and checked my email, I got an urgent message from my sister who said our mother (my biological aunt, for those of you who read my earlier post about my parents passing away) had a major stroke last night of the most serious kind. I've spent the past 2+ hours trying to figure out how to change my original Sunday flight back to the Midwest to an earlier flight that will get me to NYC sooner. Of course, the Delta toll free number doesn't work outside the US and the Delta number for the UK is only 8 a.m. - 8 p.m.  and I unfortunately tried calling them at 8:15 p.m., just missing them. Argh!

So now I feel trapped here on the other side of the Atlantic, not knowing if my mother is going to hang in there long enough for me to get home (whenever that will be). On top of that, from what my sister told me, NYC is currently in the middle of a blizzard that's supposed to drop nearly two feet of snow. I might not even be able to come home sooner than Sunday. All I can say is thank goodness I got travel insurance. I only purchased it thinking that the snowy weather in February is so unpredictable (and heavy) this year; and I didn't want to risk missing a flight due to weather delays or cancellations. I never in a million years thought that I would need to cut my trip short because of a family medical emergency.

This is going to be a LONG ten and a half hour night waiting for Delta UK to open their phone lines again...
4 Comments
Bonnnie link
2/13/2014 08:42:29 pm

Oh no! I will be keeping you in my thoughts and prayers.

Reply
Emlyn
2/22/2014 01:14:19 pm

Thank you, Bonnie. I really appreciate that!

Reply
Paul Tabachneck link
2/17/2014 08:24:44 pm

Hope that your mom is OK, or that at least you got back safely to see her.

Reply
Emlyn
2/22/2014 01:18:51 pm

Thanks, Paul. She wasn't okay at first, and I honestly didn't think I was going to make it back in time if she didn't make it. I would've been even more upset at the airline than I already am if I hadn't been there to see her. (I didn't get there until four days after the stroke.)

Luckily, she's a very strong woman, even in this weak state. The doctors and my family keep saying how her recovery has been miraculous. She still has a long way to go, but at least she's still around to travel that path towards recovery.

Thanks again!

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    About the Author

    Emlyn Altman has been suffering with misophonia for over 40 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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