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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

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Happy (pre-) Labor Day weekend

8/30/2013

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I'm sure many of you readers will be taking a break this weekend, so I just wanted to wish everyone well before you head off to your fun Labor Day weekend plans.
This weekend, I'm going to try to play catch-up with many tasks I've been putting off, (e.g. Finishing the letter to amend the police report  from my car accident, working on my memoir, and hashing out some fun ideas I've started to develop to help promote more awareness about misophonia. Once I have them fully
developed, I'll be sure to write about them here.) 

One thing I'm very excited about having recently completed is my copyrighting the logo I designed last year to go with this website. I submitted it to the US Copyright Office before I left for my trip last week and was pleasantly surprised to come home this past Tuesday night to find a letter from the Library of Congress saying that my application to copyright my design was approved. (Yippee! I thought it was going to be weeks before I heard anything back.) I'm including the logo design in this blog post. Hopefully, the design speaks for itself.     :-)
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Other than trying to strike off items from my "to do" list this weekend, I hope to unwind and play catch-up with friends, not to mention to pick up my favorite fluffy buddy from the birdie-sitter's (one of my coworker friends). I'm also a little eager to find out about the misophonia fMRI research test that hopefully will be starting soon. I've corresponded with the researcher organizing the study and tried to convince him to not let my being in the United States dissuade him from considering me as a potential candidate. I feel so strongly about trying to help with misophonia research however possible that I told him that I'd deal with the transportation costs myself as long as I'd be given equal consideration  / treatmentt as the other, more local, candidates. I've got my fingers crossed that I'll hear about the possibility of joining the study soon.

It's funny though... I've wanted to do an fMRI scan of my brain during a trigger exposure ever since I had my 3D MRI brain scan back in March, long before I even heard about the official fMRI study being done; yet I hadn't really thought about what it would involve until the past couple of weeks. I've had MRI scans done of my knee after a skiing accident in 2007 and of course I've had the 3D MRI brain scan, so I know that you have to stay REALLY still during those tests to get an accurate scan. I wonder if they might have to strap my hands down or something during the fMRI to prevent me from instinctively putting my fingers in my ears when I hear a trigger during the scan. I know how important research like this is, and I'd do anything to help us get closer to a definitive understanding of what might be happening neurologically during exposure to misophonia triggers. It's just interesting that I'd be gung-ho to deliberately put myself in a situation where I'd be exposed to triggers for a long period of time (I'm assuming) in a confined space, when during "normal" daily life, I'd do anything to get as far away from my triggers as possible. (What am I, a masochist?!?!?!?  LOL!)

Well, I guess if I've put up with it for 30 years, and will likely be putting up with it for another 30+ to come...  It would be an honor to know I can do my part to help us get one step closer to finding relief (if not a cure) from misophonia. In the meantime, I'll keep writing this blog, posting information on this website, and doing whatever I can to help - whether it helps other misophonia sufferers or by bringing more awareness about this condition to the public in general. (I'll be a regular Joanie Appleseed spreading the word on misophonia... My hair is certainly red like an apple!)  LOL!

Happy Labor Day weekend, everyone! Hope yours is trigger-free!

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    About the Author

    Emlyn Altman has been suffering with misophonia for over 35 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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