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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

Please feel free to post any comments or use the "Contact Us" page if you have any questions/comments you don't want to post online.

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Have you ever seen a bird yawn?

4/22/2014

2 Comments

 
Here I am sitting in a coffee shop again, feeling the warm sunshine and looking out the window to a clear blue sky... Not a cloud to be seen... I'm confident that we've finally seen the last of the snow (at least for six months or so...)

My cockatiel ("Tooki") was unusually whiny this morning (one of my worst triggers at home when he does it), so it hit me that I'm LONG overdue for posting an update here. I seriously think that my being unemployed has seriously spoiled him - much more than usual. It occurred
to me that I've become his "security blanket" (or living "security tree"). When I came back from my morning workout, he was extremely nudgy and whiny. I have a little perch for him at my bathroom sink so he can see me as I'm doing my hair and putting on make-up. (He screeches whenever he knows I'm in the apartment but can't see me.) So as I was getting ready, he kept whining and pacing back and forth on the perch with his wings spreading like whenever he was about to jump onto my shoulder. It's really a no-win misophonia situation for me... If I leave him on the perch, he whines non-stop every few seconds. If I put him back in the cage, then he screeches at me. If I put him on my shoulder, then I not only reinforce his behavior, I also can't get myself ready. I love the little guy but I better figure out my employment situation quickly so I can get back to a "normal" routine again and hopefully, wean him away from his clinginess. (BTW, above is my first attempt at uploading a video for this blog. It's a really cute video of a back-and-forth yawning thing he and I do when he's in a certain mood. He'll yawn, then I'll yawn, then he'll yawn... And so on until he decides to walk back to my cheek. There's a little crackling sound from the microphone so you might want to mute your volume if that is one of your triggers. It's a cute video even without sound.)

Other than that... Last week was really a rough one for me. Unfortunately, I didn't even place in the Toastmasters' (TM) Division contest, which was hard on a couple of fronts... I felt that I really knocked it out of the park, even more so than the earlier contests, but the loss had its ambiguities. Before they announced the winners, they said that someone submitted a protest to the judges. I have no clue if it
pertained to me (and if so, what I could've done that caused such a protest) because they wouldn't say what the protest was. If someone protests another's speech or qualifications, and if the judges uphold the protest, then the speaker can get disqualified. Another member of my club felt that the protest most likely didn't pertain to me, but because I didn't even place, of course the doubts run rampant in my mind. Since my speech talked about how I learned about my misophonia, it was also a very personal speech; so not placing hit me hard. Oh well. Maybe I figure out another way to talk about misophonia through a speech.

Although I got over the speech contest results, Tuesday I experienced the worst trigger bombardment since being laid off from the company with a horrible, sound-amplifying environment. I attended the second seder at a local synagogue and if it weren't for the fact that they sat me at a center table at the front of the auditorium, I would've jumped at the chance to run out of there as fast as I could. Not having lived near family for over two decades, I've gotten used to going to high holiday services at the local synagogues, but unlike the synagogue I used to attend back in DC - which served close to 700 people, but the room was completely carpeted - this seder was much smaller (perhaps 150 people) but the room had hardwood floors. That might not seem like a big deal but it really exacerbated my misophonia BIG TIME.

I got there pretty early since I hadn't pre-registered and didn't know if there'd even be an open seat for me, and was directed to a center table in the second row. A few people had already been seated, so I took an empty seat in between an older couple and a seat that had a purse on it. A few minutes later, a 91 year old gentleman (I heard him tell his age to another couple at the table) moved the purse to another chair and sat next to me. For whatever reason, the elderly man moved his chair within a few inches of mine - yet was two feet away from the person on his other side. Even when I go home for holiday meals, some of my biggest tactile triggers are when adjacent seats bump into mine or when the people next to me bump into my legs/arms/etc. He not only did that, but I'd say three-quarter of the service was sing-a-longs (sometimes creating new lyrics to popular songs). He, and the gentleman to my left, kept tapping their feet with the
singing. Every foot tap would send vibrations through the wooden floor and into my body. (I'm shuddering now just remembering it.) It got to be a point where I'd raise my feet a couple of inches above the floor just to remove that wooden conduit of vibrations. It started as a good solution, and I'm sure my fitness instructor would comment how I was strengthening my leg muscles, but given that every other page in the booklet they gave us for the service was another sing-a-long song, it wound up being very tiring and stressful. I could feel the rage boiling up in me, but no matter how much I tried to stay calm and focus on quelling the anger, the 91 year old guy kept doing things that riled me up again.

I'm sure he was just trying to be friendly, but whenever he talked to me, he'd put his hand on my shoulder which, after a while of being stressed out by the fidgeting and tapping triggers, really made me very jumpy and uncomfortable. Since we had to eat matzo during the service, he also kept spitting matzo crumbs at me with every sentence. (Granted, the guy to my left spat matzos when he talked too...) Even after explaining my misophonia to him during the interim meal break  (which he seemed to understand), once the seder started up again, I had to back my chair away from the table because the closeness of his chair and his foot tapping stressed me out again. Normally, I'd leave before the second half of the program, but they started up before dessert was finished, and being in the center table at the front of the room didn't leave me an opportunity to leave discretely. So, I sat through the last half hour and left as soon as I was able.

It took me most of the rest of the week to decompress after 3+ hours of being in that extremely tense situation (one of the reasons why I hadn't posted a blog update in a while). Perhaps it was extra-stressful because I hadn't been exposed to such a long-duration bombardment of triggers in nearly four months. It does make me wonder if I'm going to be able to put myself in such a situation again. As I've mentioned in previous posts, holiday time (even non-religious holidays) have always been uncomfortable for me regardless of whether they're with family or in these public group events. I'm not really religious to begin with, but there are times that I think to myself, "What's the point of going if I'm so uncomfortable with triggers that I can't even pay attention to what's going on around me?" It's one thing to close my eyes at the back of the synagogue and focus on the microphoned speaker, but I can't do that in a dinner setting while sitting around a round table. People would think I'm falling asleep or being rude.

I guess that's a topic to think about in another post...
2 Comments
Bonnie link
4/23/2014 10:10:44 pm

Congratulations on making it through the Seder. Perhaps this is God's way of testing you and you passed! As for your speech, I think you are a winner. It takes a lot of courage to get up in front of a group, especially when you are sharing something so personal.Please try to see the positive in these two events. You've done well.

As for your bird, my sister has two macaws. They are a lot of work! She has a room for them with a t.v. for entertainment. She also has harnesses and leashes to take them outside. Not sure if you are able to do either but this helps a bit. Too bad there isn't such a thing as "Birdie Daycare" like there is for dogs.

Reply
Emlyn
4/24/2014 06:40:12 am

Thanks, Bonnie. God seems to be testing me a lot this year (especially over these past couple of weeks).

That's amazing. **Two** macaws?!?!? I can just imagine how much work they are. I actually leave my TV on for my little guy too. (I had hoped by putting on the Disney channel when I went to work would inspire him to pick up a few words/phrases... No such luck.) I don't think he'd like being on a leash but I'll admit, his clinginess to me certainly makes him "come" as good as any dog. (His waddle is pretty funny too.) LOL!

Yes, someone needs to come up with a "birdie daycare" service. Out here, they have dog "hotels" (not kidding, and they're not kennels either), but I've been told that birds are too sensitive, so places like that are too fearful of them getting sick from their other clients. It does make traveling difficult for me. I'm grateful for one friend who has a cockatiel (as well as a dog and two cats), so I'm able to let him stay with his "play date" buddy when I go out of town.

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    About the Author

    Emlyn Altman has been suffering with misophonia for over 35 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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