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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

Please feel free to post any comments or use the "Contact Us" page if you have any questions/comments you don't want to post online.

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Long overdue update

2/22/2014

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I apologize for being offline for so long. As you can guess from my last post, it's been a whirlwind of a week. I do appreciate so many of the warm wishes of support that I've received from friends and general blog readers alike. It really means a lot to me!

To start off, I'll just say that my aunt/mom is a lot better than she was when my sister emailed me on the 13th. (My family and the doctors weren't sure if she was going to make it. From what I understand, it was the worst possible stroke a person could have (the clot was in her basilar artery), but the circumstances couldn't have been better when it happened. She was already in the car with my uncle/dad when it happened and he took her to the ER in record time. That particular ER location has a stroke unit in the ER 24/7 and the top stroke physician was on call that evening.) She still has a long way to go, and it's very difficult to see someone who is not only the strong matriarch of our immediate family, but also a central pillar connecting all of my relatives around the world, weaker than I've ever seen her. All I can say is that I am very thankful that she is doing better and is in a rehab facility now. She is truly amazing. Despite a little confusion with certain memories and some muscle weakness, she is very quick when it comes to making jokes. She frequently cracked up everyone in the room with some of her quick and witty quips.

I could probably write a tome about all the things that have happened over the past week, but I think I'll do it in drips and drabs rather than in a 10-page blog post. I'm still a little tired from the past week of traveling. The airline wouldn't let me change my flight from London to go straight to my family in NY. They made me go from London to my original end destination in Iowa and then I had to purchase a whole new ticket to go from Iowa back to New York. Then when trying to get back to Iowa on Thursday, all of the flights going to my end destination were cancelled due to blizzard conditions after I had already made my first leg to Atlanta. I'm not kidding! ALL of the hubs around the country were completely booked back to my final destination even the next day, so I wound up flying from Atlanta to Omaha and drove the rest of the way.

So, please hang on a little bit longer for more updates while I get settled. I do have a lot of misophonia updates to share: The fMRI testing experience, some of the research articles and other information I learned about from the researchers and other misophonia sufferers, even my experience flying back from London which, despite the circumstances, was a heck of a lot better than my experiences with the snide sorority "beotches" on the way over to London. (Let's just say that the cabin going back to the States was less than half full, and absolutely no one was sitting in the rows behind me. Yes, I meant that... The entire 4-5 rows behind me were empty! It was pure heaven!)

To be continued...


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    About the Author

    Emlyn Altman has been suffering with misophonia for over 40 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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