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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

Please feel free to post any comments or use the "Contact Us" page if you have any questions/comments you don't want to post online.

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Researching misophonia

1/11/2014

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Well, this was certainly a week of ups, downs, and changes. Of course, losing a job is never fun, but change can often have good outcomes. The last time I was laid off ended up in my moving to the Midwest and if that hadn't have happened, I never would have learned about misophonia. So, I am hopeful that things will start looking up (sooner than later).

It has been a big relief to not have to deal with being bombarded by triggers at my old office. My stress levels from work must've dropped considerably because I've been sleeping much more soundly and not waking up in the middle of the night at all. It's a very strange feeling to have more control over my environment, except for my cockatiel's occassional whining. As annoying as that trigger is, the good thing about it is that the sound also forces me to quickly leave the apartment and go to coffee shops or other places away from household distractions to write and strike off more things from my "to do" list. The time away from my apartment winds up being very productive for me.

What's also nice about not spending all of my waking (and sleeping) hours dealing with work issues is that I can focus more of my attention on promoting more awarenes about misophonia, researching info to broaden my own knowledge, as well as responding to readers' comments and emails (not to mention investigating potential opportunities in academia). I found a very interesting site that I hope may help open the doors to more misophonia research opportunities. It's called ResearchMatch! and it's a website where people can connect with various research studies - regardless of whether they have a condition or just want to be a part of the "control" group. It's a free site that was developed by major academic institutions across the country. Although my search of their studies didn't come up with misophonia, I signed up anyway and indicated in my profile that I'm interested in misophonia research studies. They assigned a URL to my profile so I can "campaign" for misophonia research studies; so, please take a look at the site (https://www.researchmatch.org/?p=c0a3787b), sign up, and forward the link along to others. I figure the more people that sign up for misophonia research, whether on this site or others, the more likely that researchers will see the need for misophonia studies.

So, spread the word. Let people know that misophonia is real and it needs to be researched!
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    About the Author

    Emlyn Altman has been suffering with misophonia for over 40 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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