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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

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Upcoming travels with misophonia

4/20/2013

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Okay... I'm long overdue for posting a new entry. It's been an extremely hectic week trying to wrap things up at the office before heading back east for two weeks to speak at a conference, see friends in DC/NJ, as well as visit family in NYC while I'm out there. No sooner do I get back then I'm heading west to Vegas to speak at a second conference. Needless to say, I've been very busy and it's left little time to write in general. (For those of you in Florida, check out the "Support Venues" page. I just uploaded information about a local support group that I found out is planning to have a meeting in a couple of months.)

One would hope that being pulled in so many directions would make me notice my surrounding triggers at the office less, but no such luck. It just made me frustrated at myself to have been so busy that when I heard a trigger, I realized that I forgot to put in my earbuds/earplugs. Oh well. At least getting into the office early and working late meant that there were a few hours I could work when no one else was around to create triggers.

These next couple of weeks will be very interesting for me though. It will be the first time since being diagnosed with misophonia that I've spent a whole week as an attendee at a conference as large as the one next week. (I don't count the one at which I spoke last September because I was only there for three days and was so sick with a cold, I only got out of bed to present and maybe to attend one or two networking socials in the evening.) Conferences are always tricky environments for my misophonia. As a professional, part of the benefits of attending conferences is taking advantage of all the seminars and networking opportunities; however... Networking opportunities mean LOTS of people who are eating and drinking (I have a lot of eating/drinking triggers) but even more so... Sitting in meeting rooms trying to pay attention to a speaker is almost impossible for me to do anymore. I wind up trying to get to the session super early so I can sit in the first row directly in front of the speaker/screen (eliminating the majority of my visual triggers but creating the potential of tactile triggers when people in the row behind rest their feet or bags on my row of chairs), but that's not always possible. If I don't get there early enough, then I wind up having to switch seats multiple times during the presentation or walk out entirely whenever I experience triggers by the other attendees surrounding me. I already know that the seminar that I'm presenting is expected to have over 120 people. (Hopefully, there won't be any gum chewers in the front row. LOL!)

Then there's the aspect of traveling in general to get to and from conferences. I talk a little bit about one of my plane misophonia trigger experiences on 4/12/13 in a response to a reader's comment  to my 2/27/13 post on Auditory Stimuli for Coping with Triggers post. (I find it fascinating to see how these follow-up discussions lead to other related topics...) Flying is always "fun" because if I'm not dealing with tactile triggers of the person's arm touching mine while sharing the same armrest, there are other things that arise in a confined plane cabin or even just at the terminal waiting to board.

Another interesting thing about my upcoming trip is that it will also be the first time that I'll be spending a significant amount of time at home with my aunt and uncle since I decided to actually write a memoir about the condition. We've had many discussions about what I'm going through, about my past, even just about the condition in general, but only over the phone. Now I'll not only be able to talk with them about it in person, but can also show them information from the web - especially some of the misophonia discussion groups - and other sources. (Their internet has been down for several months now and since I'm the geek of the family, they're waiting for me to come home to fix it. So, this'll be the first opportunity they'll have to see this website and especially, to see this blog.)

I'll do my best to post updates while I'm away but if I'm unable to do so, at least now you'll know why. (Just know that if that happens, I'll most likely be posting many catch-up posts when I get back to the Midwest.)
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    About the Author

    Emlyn Altman has been suffering with misophonia for over 40 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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