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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

Please feel free to post any comments or use the "Contact Us" page if you have any questions/comments you don't want to post online.

Contact ME

Updates and another misophonia webinar

8/7/2013

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Boy, has it really been tough getting back into the swing of things after last week. Thank goodness that I've finally finished some deadlines at work. Hopefully, the lessening of project related stress can help get things steadily back to normal. I really am trying to get back into the swing of posting blog entries more frequently - with new discoveries and deep thoughts that I continue to make on my quest for misophonia relief. One endeavor that I'm pursuing is the possibility of getting a "green light" to participate in a fMRI study on misophonia (I've got my fingers crossed that I'll hear soon).

I'm also still trying to find brief moments here and there to read "Sound Rage" and work on my own memoir. (It's getting there, slowly but surely.) I'm really enjoying what I've read in "Sound Rage" so far and can completely relate to so many of the examples. A lot of what the author wrote really resonates with me, almost like I'm reading my own voice. I still haven't gotten to the more scientific parts of the book yet. I did send a copy of the book to my uncle, who is a clinical social worker, to see what he thought. He and I have had MANY thoughtful discussions about misophonia since I first heard about the term last year. Since he's a professional therapist, I figured he might be interested in reading a more scientific book from an outside perspective than my own. (My family has only been learning about misophonia from my perspective, mainly since my aunt and uncle aren't major web-surfers like I am.) From what my aunt told me, he hasn't been able to put the book down since he got it a couple of weeks ago. (He's read it multiple times - which is typical when he really gets into a book like that.) I hope to at least read it through once by this weekend, so that I can start taking our conversations to another level.

On another note... Normally, I try to be good (and prompt) about posting information about research, articles, and other helpful information that I find to share with everyone, but given the events of last week, I haven't been doing much work on the computer besides work-work. So, here are some updates... I received an email from someone wanting to form a local misophonia support group in Southeast Michigan. If anyone is interested, send me a message via the "Contact Us" page and I'll forward the email to you. (You might be able to also go to MeetUp.com and search for the UK Misophonia group - which has posts from people here in the states looking to start local groups here.)

I also missed an opportunity to announce another webinar presented by Thomas Dozier this past Tuesday entitled "Overcoming Misophonia - Theory and Practice." Well, the techie gremlins must've felt bad that I couldn't share that information with my SenseHaven.com readers because I just received an email from Thomas saying that since he wasn't able to record Tuesday's webinar, so he's presenting it again tomorrow. For those of you who may be interested, I've included the message from the email below. (Please note:
I haven't seen the program, so I'm not able to comment about the content or the quality of the presentation. I'm just forwarding along information about how to attend the Webinar - should anyone wish to do so.)



Are you Interested in Misophonia?

Thomas Dozier invites you to attend a  Web seminar using WebEx. This event requires registration.

Topic:  Overcoming Misophonia - Theory and  Practice
Description: Tom Dozier will  explain his theory of misophonia and how he successfully treats this condition.  This webinar will cover
  1. Results of the Dozier Method for the first 13  patients
  2. Survey results: How common is misophonia and when it starts
  3. What is happening in your brain and body when you hear a trigger (and supporting  research)
  4. How to explain misophonia so others will understand
  5. Your  best options when hearing a trigger (and why)
  6. How to prevent acquiring new  triggers
  7. What you can do to reduce the overall severity of triggers
  8. How to rewire your brain to eliminate a trigger
Host: Thomas  Dozier
Date and Time:
Thursday, August 8, 2013 9:00 am, Pacific Daylight  Time (San Francisco, GMT-07:00)
Thursday, August 8, 2013 12:00 pm, Eastern  Daylight Time (New York, GMT-04:00)
Thursday, August 8, 2013 5:00 pm, GMT  Summer Time  (London, GMT+01:00)

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To register for the online event
-------------------------------------------------------
1. Go to
https://3lparenting.webex.com/3lparenting/onstage/g.php?d=669281455&t=a&EA=emlyn%40sensehaven.com&ET=63ab76e0fa88e2e3ae204fc1568e15e4&ETR=9be33506907c31e7460d3d6592e32ae9&RT=MiM0&p
2.  Click "Register".
3. On the registration form, enter your information and  then click "Submit".

Once the host approves your registration, you will  receive a confirmation email message with instructions on how to join the  event.

-------------------------------------------------------
For  assistance, you can  contact Thomas Dozier at:
[email protected]

http://www.webex.com

IMPORTANT  NOTICE: This WebEx  service includes a feature that allows audio and any documents and other  materials exchanged or viewed during the session to be recorded. By joining this  session, you automatically consent to such recordings. If you do not consent to  the recording, discuss your concerns with the meeting host prior to the start of  the recording or do not join the session. Please note that any such recordings  may be subject to discovery in the event of litigation.
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    About the Author

    Emlyn Altman has been suffering with misophonia for over 40 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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