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The "Butterfly's Whisper" Blog

Welcome to my blog. I hope by sharing my own misophonia experiences, others who are frustrated with misophonia sensitivities will discover that they're not alone. I also hope that people who may not have misophonia will gain some insight about what it's like to have this condition.

Please feel free to post any comments or use the "Contact Us" page if you have any questions/comments you don't want to post online.

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Winter tactile triggers

1/5/2014

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Brrrrrrrr... The one thing that struck me most about my move out to the Midwest is that, with the land so flat and not many tall buildings or forests, the wind chill really hits hard here. According to the local news station, it's currently 1° outside with a windchill of -13°. That's actually warm for the past week, and it's supposed to get even colder. Eek! It's this type of weather that really exacerbates my tactile triggers. Normally, certain silks - especially pantyhose or tights - are my biggest tactile triggers, but when the weather is this cold and dry, even fabrics that don't usually bother me set off my misophonia. I wind up having to slather lotion on my hands in the morning just to put on my regular cotton clothes.

I'm starting to plan for my trip to London next month, to participate in the fMRI misophonia study. I made sure that my passport is up to date (it's good until 2021) and checked to make sure I didn't need any visas or other extra preparation because of the study. (Although I'm doing the study for personal reasons, not business, I don't want any to mess around and wait until the last minute if I do need something special for the trip.)

I'm also glad that I bought travel insurance when I purchased my airline tickets. It may have been more expensive than I've usually had to pay, probably due to the fact that it's an international trip, given how many flights were cancelled with the snow storm that hit us on New Year's, and then shut down many flights in Chicago/Atlanta/NYC Airports as the storm moved eastward, I'm not going to mess around that something like that won't happen in February. I also made sure I'm getting there three days before the testing not only to give me a little buffer in case I do have flight delays, I want to make sure that I have plenty of time to rest up before the testing so that I have no residual jet lag that might affect the fMRI testing. Given that I lost sensitivity to triggers when I was on Tramadol after the car accident, and became extremely groggy in the mornings, I want to be at my most alert - or at least closest to my "normal" state of mind - when I go in for the testing.

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    About the Author

    Emlyn Altman has been suffering with misophonia for over 35 years, even though she only found out about the actual medical condition much more recently. As frustrating as the condition has been over the years, her heightened sensitivities across all the senses considerably influenced her talents within the visual fine arts (particularly sculpture), music (singing, piano, and many other instruments), writing, and culinary backgrounds, as well as professional achievements as an architectural lighting designer. Her goal in developing this website is to promote more awareness about misophonia and help other sufferers as well.


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